The write-up is a paper that I completed for my PEDS class. We were required to write a paper about a person or family who deals with a chronic illness. Having lived with MSUD in our family for almost 24 years, this was one of the easiest papers to write. Thought I’d share with you all!
Receiving the phone call that changed our family’s life…a shortened version of my brother’s liver transplant journey and the bumps in the road that we experienced through it all…and reminded of the presence of God through it all!
So much has happened since I last wrote that the best thing to do is to start from the beginning, so that it all makes sense. For those of you who may not know, my brother Jordan, who was born in June 1991, was diagnosed in at 7 days old with Maple Syrup Urine Disease(MSUD). MSUD… Continue reading Changes….
